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Sometimes when I'm out with people, I'm reminded of what I can't see anymore. It's often not that tragic, but every now and then there are small things that I realize I miss. Just like recently on the nature trail.
Stargardtiens have to constantly compensate for the reduced sense of sight. The next best channel of perception is hearing. And you can get quite far with it as I recently realised again while hammering in a nail.
Stargardt changed my table manners. Fortunately, the customs in Kenya suit me in that regard.
As a Stargardtien, the sense of listening is more important than vision. The sounds around you can tell you much about what is going on. Even if you just sit on the porch of your house. The following newsletter features an audio recording of a typical Sunday in Nyahururu.
This is a short one: Recently I met a friend who works in adult education. The new semester had just started and due to the current COVID-situation, the students were required to wear masks. My friend mentioned how difficult it is to recognize his new students and learn their names because of those masks. Well, for a Stargardtien this is the steady-state: Even when people don't wear masks they are difficult to recognize.
I am Lorenz and have Stargardt since I turned 14. On these pages, I want to report how I live with the condition. On the one hand, I want to make the "normal seeing" people aware of what characterizes persons with Stargardt and why they sometimes act as they do, using examples of daily life. On the other hand, I want to show my "fellow-Stargardtiens" what tricks I use and where the chance of having Stargardt lie in perceiving the world differently.
Have fun reading and let me know your feedback!
lorenz@stargardt.ch