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Stairs are getting tricky. Not so much going up — I can manage that without running out of breath. The real trouble starts when I have to go back down.
Parrots play outside the window, a monitor lizard runs along the top of the garden wall, and a butterfly with transparent wings flutters around the flowers in the cashew tree. I can't see any of it, but thanks to my partner, I'm still right in the middle of it all.
Things fall. If they are small, it is difficult for a Stargardian to find them again. The ears help, but sometimes they need a broom.
Sometimes I feel like a secondary illiterate: I learned to read in school, but thanks to Stargardt I can hardly use it when I walk through the streets.
It appears that many stairs in Kenya are constructed somewhat haphazardly and don't adhere to a standard design. As a result, I had to learn how to climb stairs twice.
I am Lorenz and have Stargardt since I turned 14. On these pages, I want to report how I live with the condition. On the one hand, I want to make the "normal seeing" people aware of what characterizes persons with Stargardt and why they sometimes act as they do, using examples of daily life. On the other hand, I want to show my "fellow-Stargardtiens" what tricks I use and where the chance of having Stargardt lie in perceiving the world differently.
Have fun reading and let me know your feedback!
lorenz@stargardt.ch