Select your language
Select your language
An effect of Stargardt is that it is sometimes not so clear who or what I'm looking at. If I want to fix something or look at someone, I need to specifically look next to it with both eyes to see anything. I'm cross-eyed with both eyes at the same time. If I look at the object of interest straight forward, it is completely gone and I do not see anything.
Recently at my place of work, I went to the restroom. When I walked into one of the compartments and got ready for my task, I halted puzzled.- Since when do we have toilet lids? In recent times much has been renovated and re-built in the building and I was prepared to search again for some offices and learn new locations. But the toilets were still in the same place and excluded from the construction work. Then I looked at it a second time, and behold, there was only the usual toilet seat there. My first look at must has been aligned in such a way that my blind spot came to lie exactly on the toilet seat. My brain quickly filled the gap and inserted a toilet lid.
When I 'm travelling, I usually have some binoculars with me, especially when I move into areas I don't know well. I need the binoculars than to read street signs or house numbers. For others, this looks somewhat confusing, as I stand at very unusual places and watch something with my binoculars. On a hike, instead of looking at the view I stand with my back to it and look at the rock wall behind the tail because the signpost is standing there.
Here is a challenge from everyday life: Try applying white toothpaste to white toothbrush bristles, all against the background of a white washbasin. It was not uncommon for me to get a portion of toothpaste on the white tiles on the floor or on my feet. How to eliminate this problem.
I am Lorenz and have Stargardt since I turned 14. On these pages, I want to report how I live with the condition. On the one hand, I want to make the "normal seeing" people aware of what characterizes persons with Stargardt and why they sometimes act as they do, using examples of daily life. On the other hand, I want to show my "fellow-Stargardtiens" what tricks I use and where the chance of having Stargardt lie in perceiving the world differently.
Have fun reading and let me know your feedback!
lorenz@stargardt.ch